I sent out my first batch of queries today!! Now I wait, and keep my fingers and toes crossed! Wish me luck!
June 2010 Layla's health
Layla has been doing well since her last surgeries. She recently had an MRI done to check her progress. The malformation has extended deeper into her muscles and tissue. Please come back for updates
June 2010 Yoga DVD
At long llast! My yoga DVD is being produced on June 28th. It will be released late July to early August. Thanks for all your support!
June 2010 My Book
I am in the process of writing a book, one that I have wanted to write for ten years. I am so very excited, and hope that my story will inspire and motivate all of you!! Remember anything is possible when you believe in yourself!
September 2007-Present YOGA CERTIFICATION
I have completed Yoga certification levels one, two, and three as well as anotomy and alignment. With nearly 300 hours of teaching experience I am so excited and blessed to share the gift of yoga!
June Carwash Thanks
Thanks to all who stopped for the carwash today, and those who helped at the car wash. A special thanks to Subway of Millersville for surprising us with lunch it is greatly appreciated! And thanks so much to Lebzelters of Millersville for letting us have our carwashes at your location, we are so greatful.
July 7th Boston Trip Part two
Layla is due to fly to Boston next week July the 7th. She has a pre-op on Tuesday, and sceleratherapy on Wednesday. A special thanks to Angel Flights for helping us with this trip you truly are angels. And thank you to everyone that helped with our fundraisers.
June BakeSale support
Thanks to all of you who helped at the Bake Sale. I greatly appreciate all of your purchaces. Hope you all enjoyed your treats!
June 2nd Intelligencer Journal
Layla's story to be in the morning paper. Please have a look!
May 19th Boston Trip
Just wanted to let all of you know that Layla is back from her trip to Boston. Things went well. She suffered from extreme pain when she woke up from the sceleratherapy. It was a rough first day, but she is doing much better. She is due back in six to eight weeks to repeat the procedure. She will also need a surgery to debulk her leg. Thanks for all the support!
May 9th Im so excited!
A Newspaper reporter was here today. Linda Espenshade from the Intelligencer Journal. she is doing a story about Layla and KT sydrome and how it has been in my life. Im so thrilled, she also gave me some names of some contacts who could possibly help me create my DVD. I feel so proud and so positive to have come this far. This is huge for those with KT, and to help people be more positive about life!
May 9th Layla's results from Blood test
Before I go into the results let me explain what normal results are. A good hemogloblin level for a baby is around 11. 10 would even be okay. Her level is at about 8.5 right now. She is still struggling with her anemia, even with the iron suppliments. Before her transfusion her level was at an all time low of 5.8, which put her in danger of going into heart failure. After the trasfusion it had gone up to about 8.9, which is a huge improvment. It is evident that she still struggles to keep those levels up with the iron supplements she takes daily. It has been decided that in Boston on Monday she will get a Blood test and a possible blood transfusion the night before her procedure. I will update the best I can, we will be away on Mothers day until next weekend.
May 5th BLOOD TEST FOR LAYLA
Layla has an appointment today to get her blood checked. We will see if she she needs a blood transfusion before her trip to Boston. We have to make sure she has good results so she is prepared for the blood she will lose during her procedure
May 13th 2008 LAYLA'S FIRST MAJOR PROCEDURE
Layla will have her first procedure called Sclerotherapy. A medicine called a sclerosant, is directly injected into her abnormal blood vessel. It will cause clotting and shrinkage of the malformation. The procedure may need to be repeated, but the hope is to minimize her daily bleeding. This is a big step for us and I am very nervous. But I know the procedure has to be done because she has already had one blood transfusion from losing to much blood. Boston Childrens Hospital will be preforming the procedure. I have every confidence in them. They are staffed with wonderful brillant doctors. I will keep you updated.
